Updated report on patient registries for rare diseases

Thursday 4 August 2011

The EU's Rare Diseases Task Force has published an updated version of its report on the role of patient registries and databases in the field of rare diseases.

>> http://ec.europa.eu/health/rare_diseases/docs/patient_registries_rev2011.pdf


Further information

European Oncology Nursing Society
Avenue E. Mounier 83
B-1200 Brussels
Belgium
Tel: +32 (0)2 779 9923
Fax: +32 (0)2 779 9937
eons.secretariat@cancernurse.eu