Health policy news

Rare diseases: report on pilot European Reference Networks

Added: Thursday 4 August 2011

The EU recently carried out a study on European Reference Networks for rare diseases. These networks are intended to link up centres of expertise in the field of rare diseases. Knowledge-sharing between centres of expertise has proved to be a very efficient approach to dealing with rare diseases in Europe. The report gives more information about how networks enable centres to improve standards of both research and patient care.

+  http://ec.europa.eu/health/rare_diseases/docs/eucerd2011_report_european_ref_net.pdf


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